At a glance
ClinicalIndex Comparison RecordN/ACompleted· 5,000 enrolled
Drug / intervention
Not specified
Likely dose
Not stated in record
Structured eligibility isn't available for this trial yet — see the full criteria in the Eligibility tab below.
Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.
Scleroderma Family Registry and DNA Repository
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)·observational·Posted Dec 17, 2003·Updated Sep 27, 2022
In Brief
An observational study for Systemic Sclerosis and Scleroderma. Completed, enrolled 5,000 participants across 1 site.
Detailed Summary
Scleroderma is likely caused by a combination of factors, including an external trigger (infection or other exposure) and a genetic predisposition. The Scleroderma Registry will conduct genetic analyses for disease-related genes in patients with scleroderma and their family members (parents, brothers, and sisters).
Study Details
Study Typeobservational
Allocation--
Masking--
Primary Purpose--
ConditionsSystemic Sclerosis, Scleroderma
CountriesUnited States
Timeline
N/ACompletedFinished
2000200120022003200420052006200720082009201020112012201320142015201620172018201920202021202220232024202520262027
Enrollment StartSep 2000
First PostedDec 2003
Primary CompletionJan 2022
TodayJul 2026
First PostedDec 17, 2003
Enrollment StartSep 1, 2000
Primary CompletionJan 1, 2022
TodayJul 2, 2026
Enrollment to primary: 21.3 yearsPosted 22.5 years ago