At a glance
ClinicalIndex Comparison Record- ✓Known or suspected sickle cell disease
- ✓Age 2 years or older
- ✓Willing to provide informed consent or appropriate informed consent from parent or legal guardian
- ✓Patients seen at sickle outpatient clinics at participating centers (CNHS or NIH)
- ✕Patient and/or guardian unable and unwilling to give informed consent or assent
- ✕Age less than 2 years
Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.
Studies of the Natural History of Sickle Cell Disease
In Brief
An observational study for Pain Crisis. Currently recruiting, targeting 3,500 participants across 3 sites.
Detailed Summary
This study is not a treatment protocol and no experimental treatments are involved. Study participants may be seen as needed for clinical, translational and basic research studies, or as medically indicated. Subjects will receive their general medical care outside the NIH and will be seen at our clinic or at CNHS with varying frequency. Subjects may be seen for multiple visits. Subjects may be asked to return for additional testing as needed. Clinical care for patients with sickle cell disease will be provided as appropriate through the Sickle Cell Clinic and the inpatient clinical center.
Study Details
Timeline
Arms & Interventions
Individuals with known or suspected sickle cell disease