CI

At a glance

ClinicalIndex Comparison Record
N/ACompleted· 125 target
Drug / intervention
Survey +1 moreother
Likely dose
Not stated in record
Structured eligibility isn't available for this trial yet — see the full criteria in the Eligibility tab below.

Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.

Search/NCT00724646
NCT00724646N/ACompleted
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Direct Care Staff and Parents'/Legal Guardians' Perspectives on End-of-Life Care in a Long-Term Care Facility for Medically Fragile and Intellectually Disabled Pediatric and Young Adult Residents

Akron Children's Hospital·observational·Posted Jul 29, 2008·Updated Sep 15, 2009

In Brief

An observational study evaluating Survey and Focus group for Death. Completed, enrolled 125 participants across 1 site.

Detailed Summary

Hattie Larlham is a specialized long-term care facility for pediatric and young adult residents who are medically fragile and intellectually disabled, whose daily care is provided by direct care staff, Habilitation Assistants (HA), in conjunction with nurses and other direct care providers. The purpose of this study is to assess the perspectives of HA and parents/legal guardians on end-of-life care in a long-term care facility for pediatric and young adult residents who are medically fragile and intellectually disabled.

Study Details

Study Typeobservational
Allocation--
Masking--
Primary Purpose--
ConditionsDeath
CountriesUnited States
Collaborators--

Timeline

N/ACompletedFinished
2009201020112012201320142015201620172018201920202021202220232024202520262027
First PostedJul 29, 2008
Enrollment StartFeb 1, 2009
Primary CompletionApr 1, 2009
Study CompletionJun 1, 2009
TodayJul 2, 2026
Enrollment to primary: 2 monthsPosted 17.9 years ago

Interventions

Surveyother

3 individual surveys

Focus groupother

Focus group discussions facilitated by a psychologist