At a glance
ClinicalIndex Comparison RecordN/ACompleted· 13,521 enrolled
Drug / intervention
Genetic study of ALS familiesother
Likely dose
Not stated in record
Structured eligibility isn't available for this trial yet — see the full criteria in the Eligibility tab below.
Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.
Identification of Genes Causing Familial ALS or Increasing Risk for Sporadic ALS and ALS With Frontotemporal Dementia and Understanding Disease Mechanism.
In Brief
An observational study evaluating Genetic study of ALS families for Amyotrophic Lateral Sclerosis (ALS) and 6 related conditions. Completed, enrolled 13,521 participants across 1 site.
Detailed Summary
We are collecting blood samples, clinical and family information from ALS (amyotrophic lateral sclerosis) patients and their families to identify causes of ALS and ALS/dementia.
Study Details
Study Typeobservational
Allocation--
Masking--
Primary Purpose--
ConditionsAmyotrophic Lateral Sclerosis (ALS), Familial Amyotrophic Lateral Sclerosis, ALS With Frontotemporal Dementia (ALS/FTD), Lou Gehrig's Disease, Motor Neuron Disease (MND), Primary Lateral Sclerosis (PLS), Sporadic ALS (SALS)
CountriesUnited States
Collaborators--
Timeline
N/ACompletedFinished
1991199219931994199519961997199819992000200120022003200420052006200720082009201020112012201320142015201620172018201920202021202220232024202520262027
Enrollment StartJan 1991
First PostedJan 2009
Primary CompletionJan 2023
TodayJul 2026
First PostedJan 13, 2009
Enrollment StartJan 1, 1991
Primary CompletionJan 1, 2023
TodayJul 2, 2026
Enrollment to primary: 32 yearsPosted 17.5 years ago
Interventions
Genetic study of ALS familiesother
Collection and analysis of genetic material, medical and family histories from families with ALS