CI

At a glance

ClinicalIndex Comparison Record
N/ACompleted· 6,061 enrolled
Drug / intervention
Not specified
Likely dose
Not stated in record
Structured eligibility isn't available for this trial yet — see the full criteria in the Eligibility tab below.

Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.

Search/NCT01374360
NCT01374360N/ACompleted
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Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry

Alexion Pharmaceuticals, Inc.·observational·Posted Jun 16, 2011·Updated Jan 20, 2026

In Brief

An observational study for Paroxysmal Nocturnal Hemoglobinuria. Completed, enrolled 6,061 participants across 1 site.

Detailed Summary

This study is a collection of data to evaluate safety and characterize progression of Paroxysmal Nocturnal Hemoglobinuria (PNH).

Study Details

Study Typeobservational
Allocation--
Masking--
Primary Purpose--
ConditionsParoxysmal Nocturnal Hemoglobinuria
CountriesUnited States
Collaborators--

Timeline

N/ACompletedFinished
20052006200720082009201020112012201320142015201620172018201920202021202220232024202520262027
First PostedJun 16, 2011
Enrollment StartOct 29, 2004
Primary CompletionApr 14, 2025
TodayJul 2, 2026
Enrollment to primary: 20.5 yearsPosted 15.0 years ago