CI

At a glance

ClinicalIndex Comparison Record
Phase 2Completed· 36 enrolled
Drug / intervention
Infusion of autologous EFS-ADA LV CD34+ cells +3 moregenetic
Likely dose
Not stated in record
Structured eligibility isn't available for this trial yet — see the full criteria in the Eligibility tab below.

Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.

Search/NCT01380990
NCT01380990Phase 2Completed

Phase I/II, Historical Controlled, Open-label, Non-randomised, Single-centre Trial to Assess the Safety and Efficacy of EF1αS-ADA Lentiviral Vector Mediated Gene Modification of Autologous CD34+ Cells From ADA-deficient Individuals

Great Ormond Street Hospital for Children NHS Foundation Trust·interventional·Posted Jun 27, 2011·Updated Sep 16, 2021

In Brief

A Phase 2 clinical trial evaluating Infusion of autologous EFS-ADA LV CD34+ cells, Haematopoietic Stem Cell Transplantation (HSCT), and 2 other interventions for Adenosine Deaminase Deficiency and Severe Combined Immunodeficiencies (SCID). Completed, enrolled 36 participants across 1 site.

Detailed Summary

This is a historically controlled, non-randomized Phase I/II clinical trial to assess the safety and efficacy of autologous transplantation of CD34+ hematopoietic stem/progenitor cells (HSPCs), obtained from infants affected by ADA-SCID, following transduction of the HSPCs with a lentiviral vector (LV) carrying the human ADA complementary DNA (cDNA) under the control of the elongation factor 1 alpha shortened (EFS) promoter. Subjects treated in the trial receive the infusion of autologous, transduced cells following marrow cytoreduction with busulfan. The outcomes are compared to those observed in a historical control group of patients who received an allogeneic hematopoietic stem cell transplant (HSCT). This Phase I/II clinical trial will be performed at Great Ormond Street Hospital (GOSH), London, United Kingdom.

Study Details

Study Typeinterventional
Allocation--
Masking--
Primary Purpose--
CountriesUnited Kingdom

Timeline

Phase 2CompletedFinished
201220132014201520162017201820192020202120222023202420252026
First PostedJun 27, 2011
Enrollment StartNov 15, 2012
Primary CompletionDec 23, 2019
TodayJul 2, 2026
Enrollment to primary: 7.1 yearsPosted 15.0 years ago

Interventions

Infusion of autologous EFS-ADA LV CD34+ cellsgenetic

Autologous EFS-ADA LV CD34+ cells (OTL-101\*) are infused intravenously

Haematopoietic Stem Cell Transplantation (HSCT)other

Historical data from a database of ADA-SCID patients treated with allogeneic HSCT from GOSH will be collected as comparator group.

Busulfandrug

Busulfan is used for non-myeloablative conditioning

Peg-Adadrug

Peg-Ada enzyme replacement therapy is discontinued at Day +3- (-3/+15 days) after successful engraftment