At a glance
ClinicalIndex Comparison RecordN/ACompleted· 1 enrolled
Drug / intervention
No drug +1 moreother
Likely dose
Not stated in record
Structured eligibility isn't available for this trial yet — see the full criteria in the Eligibility tab below.
Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.
Cross-sectional, Non-interventional Burden Of Disease (Bod) Study In Patients With Transthyretin Familial Amyloidosis Polyneuropathy (Ttr-fap) Or Transthyretin Cardiomyopathy (ttr-cm) And Caregivers
In Brief
An observational study evaluating No drug for Transthyretin Familial Amyloidosis Polyneuropathy (TTR-FAP) and 3 related conditions. Completed, enrolled 1 participant.
Detailed Summary
This study is an online (web-based) or paper-based survey for patients with transthyretin familial amyloidosis polyneuropathy (TTR-FAP) and caregivers. The results will be used to describe the emotional, physical, and financial impact of having TTR-FAP or caring for someone who has the disease.
Study Details
Study Typeobservational
Allocation--
Masking--
Primary Purpose--
ConditionsTransthyretin Familial Amyloidosis Polyneuropathy (TTR-FAP), Transthyretin Cardiomyopathy (TTR-CM), Familial Amyloid Cardiomyopathy, Senile Systemic Amyloidosis (SSA)
Countries--
Collaborators--
Timeline
N/ACompletedFinished
201220132014201520162017201820192020202120222023202420252026
Enrollment StartApr 2012
First PostedMay 2012
Primary CompletionJul 2015
Study CompletionJul 2016
TodayJul 2026
First PostedMay 23, 2012
Enrollment StartApr 18, 2012
Primary CompletionJul 27, 2015
Study CompletionJul 18, 2016
TodayJul 2, 2026
Enrollment to primary: 3.3 yearsPosted 14.1 years ago
Interventions
No drugother
No drug.
No drugother
No drug.