CI

At a glance

ClinicalIndex Comparison Record
N/ACompleted· 3,138 enrolled
Drug / intervention
Benlysta +1 morebiological
Likely dose
Not stated in record
Structured eligibility isn't available for this trial yet — see the full criteria in the Eligibility tab below.

Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.

Search/NCT01729455
NCT01729455N/ACompleted

A 5-Year Prospective Observational Registry to Assess Adverse Events of Interest and Effectiveness in Adults With Active, Autoantibody-Positive Systemic Lupus Erythematosus Treated With or Without BENLYSTA™ (Belimumab)

GlaxoSmithKline·observational·Posted Nov 20, 2012·Updated Mar 20, 2026

In Brief

An observational study evaluating Benlysta and Standard of Care (SoC) Therapy for Systemic Lupus Erythematosus. Completed, enrolled 3,138 participants across 179 sites in 13 countries.

Detailed Summary

The purpose of this prospective, observational cohort study is to evaluate the incidence of adverse events of special interest (AESI) and effectiveness in participants with active, autoantibody-positive SLE treated with and without BENLYSTA (belimumab). Participants will be enrolled into 1 of 2 cohorts: (1) BENLYSTA cohort: participants receiving or initiating BENLYSTA plus standard of care (SOC) at Baseline; (2) comparison cohort: participants not receiving BENLYSTA but receiving SOC at Baseline. After enrollment, changes in lupus medications, including starting or stopping BENLYSTA, are at the discretion of the physician, and all participants will continue to be followed regardless of changes in their lupus medicines until study completion. All participants will be assessed for AESI including serious infections, opportunistic infections and other infections of interest, malignancies, selected serious psychiatric events and mortality. Data will be collected at enrollment and at 6 month intervals for 5 years. BENLYSTA is a registered trademark of GlaxoSmithKline (GSK) group of companies.

Study Details

Study Typeobservational
Allocation--
Masking--
Primary Purpose--
CountriesArgentina, Austria, Belgium, Canada, France, Germany, Israel, Italy, Portugal, Slovakia, Spain, Sweden, United States
Collaborators--

Timeline

N/ACompletedFinished
20132014201520162017201820192020202120222023202420252026
First PostedNov 20, 2012
Enrollment StartFeb 21, 2013
Primary CompletionFeb 28, 2025
TodayJul 2, 2026
Enrollment to primary: 12.0 yearsPosted 13.6 years ago

Interventions

Benlystabiological

As prescribed. Belimumab is a recombinant, human, IgG1λ monoclonal antibody for the treatment of systemic lupus erythematosus.

Standard of Care (SoC) Therapyother

As prescribed. At baseline, SoC therapy must have included an immunosuppressant. During the registry, SoC therapy could include any of the following (alone or in combination): immunosuppressants, corticosteroids, antimalarials, other biologics, investigational agents for SLE, as clinically indicated.