At a glance
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An Interactive Advance Care Planning Intervention to Facilitate a Good Death for Cancer Patients
In Brief
A clinical study evaluating Interactive advance care planning and Attention usual care for End Stage Cancer. Completed, enrolled 466 participants across 1 site.
Detailed Summary
The purpose of this 5-year interventional study is to design, implement, and evaluate the effectiveness of an intervention aimed at facilitating prognosis communication and end-of-life care decision-making to increase the extent of congruence between the patient's preferred and actual EOL care received and patients' and family caregivers' QOL and psychological well-being, reduce futile aggressive healthcare resources utilization at end-of-life, and facilitate bereavement adjustment.
Study Details
Timeline
Interventions
The facilitator will begin each course of intervention by assessing the patient's and his/her family caregiver's readiness for engagement in ACP independently. Providing participant-centered care tailored to the specific needs of participants at each stage of readiness for engagement in ACP. Facilitating EOL care discussions throughout the dying process. A workbook and a video decision aid that briefly describes ACP to enhance participants' understanding of the essential elements in ACP.
a consistent master prepared nurse on the study team will provide the attention portion of the care. The initial meeting will occur before the patient discharges from hospital and the usual care nurse will give patients and family caregivers a workbook and a video with educational materials on how to manage common symptoms and a comprehensive list of resources available, including patient support organizations, support and financial assistance through the social work department..