At a glance
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Patient-Provider Interventions to Improve Transition to Adult Care in SCD
In Brief
A clinical study evaluating Self-management intervention for Adolescents with SCD and Patient Portal Intervention for Adolescents with SCD for Sickle Cell Disease. Completed, enrolled 78 participants across 1 site.
Detailed Summary
The purpose of the study is to develop patient-provider clinical support tools to improve clinical practice, patient self-management, and disease outcomes in sickle cell disease during transition to adult care. The investigators hypothesize that these clinical support tools (patient tool, provider tool, and patient/parent web-based portal) will be feasible, user friendly, and beneficial. The investigators hypothesize that participants will demonstrate better disease self-efficacy at the end of the 6 week intervention and maintain these gains during the follow-up period (up to 1 year post-intervention).
Study Details
Timeline
Interventions
Chronic Disease Self-Management Program
MyChart for SCD intervention