CI

At a glance

ClinicalIndex Comparison Record
N/ACompleted· 512 enrolled
Drug / intervention
Training Website +1 moreother
Likely dose
Not stated in record
Structured eligibility isn't available for this trial yet — see the full criteria in the Eligibility tab below.

Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.

Search/NCT02887339
NCT02887339N/ACompleted
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Ethical, Legal, and Social Issues Substudy in Relation to the Genotype-Tissue Expression Project

Temple University·interventional·Posted Sep 2, 2016·Updated Mar 30, 2021

In Brief

A clinical study evaluating Training Website and Control for Standard Training and Online Training. Completed, enrolled 512 participants across 1 site.

Detailed Summary

The Ethical, Legal and Social Issues Substudy in relation to the Genotype Tissue Expression Project (GTEx) aims to describe tissue requesters' approach to discussions about donation to GTEx and to assess the determinants of families' and patients' willingness to donate to GTEx. It also explores ethical issues such as privacy, risks, and release of incidental findings and recommend best practices for conducting authorizations and training requesters.

Study Details

Study Typeinterventional
Allocation--
Masking--
Primary Purpose--
ConditionsStandard Training, Online Training
CountriesUnited States
CollaboratorsNational Cancer Institute (NCI)

Timeline

N/ACompletedFinished
20132014201520162017201820192020202120222023202420252026
First PostedSep 2, 2016
Enrollment StartMar 1, 2013
Primary CompletionAug 1, 2016
Study CompletionDec 1, 2017
TodayJul 2, 2026
Enrollment to primary: 3.4 yearsPosted 9.8 years ago

Interventions

Training Websiteother

Additional training website can be found at gtextraing.org

Controlother

Standard training given by OPOs and GTEx staff