CI

At a glance

ClinicalIndex Comparison Record
N/ACompleted· 56 enrolled
Drug / intervention
Not specified
Likely dose
Not stated in record
Structured eligibility isn't available for this trial yet — see the full criteria in the Eligibility tab below.

Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.

Search/NCT03814499
NCT03814499N/ACompleted

A Multicentre Longitudinal, Observational Natural History Study to Evaluate Disease Progression in Subjects With Usher Syndrome Type 1B (USH1B)

Fondazione Telethon·observational·Posted Jan 24, 2019·Updated Dec 9, 2024

In Brief

An observational study for Usher Syndrome, Type 1B. Completed, enrolled 56 participants across 3 sites in 3 countries.

Detailed Summary

Natural History Study in Subjects With Usher Syndrome ((USH1B) is a multi-centre, longitudinal, observational study designed to evaluate disease progression in subjects with USH1B by several vision-related assessments.

Study Details

Study Typeobservational
Allocation--
Masking--
Primary Purpose--
CountriesItaly, Netherlands, Spain
Collaborators--

Timeline

N/ACompletedFinished
20192020202120222023202420252026
First PostedJan 24, 2019
Enrollment StartJun 1, 2018
Primary CompletionDec 30, 2020
Study CompletionDec 30, 2022
TodayJul 2, 2026
Enrollment to primary: 2.6 yearsPosted 7.4 years ago