At a glance
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SMYLS: A Self-management Program for Youth Living With Sickle Cell Disease
In Brief
A clinical study evaluating Voice Crisis Alert V2 for Sickle Cell Disease. Completed, enrolled 30 participants across 1 site.
Detailed Summary
The purpose of this study is to find out whether a web-based intervention using a mobile device is helpful for teens learning to care for and manage symptoms of sickle cell disease. The intervention lasts 12 weeks with a 3-month follow up period, and uses a smartphone or a tablet.
Study Details
Timeline
Interventions
An mHealth intervention (app) with multiple components for self-management behavior development. Components include: electronic educational information, symptom monitoring and tracking, communication with a provider, health history entry and storage (including medication adherence).