CI

At a glance

ClinicalIndex Comparison Record
Phase 3Active· 33 target
Drug / intervention
NGN-401genetic
Likely dose
Not stated in record
Structured eligibility isn't available for this trial yet — see the full criteria in the Eligibility tab below.

Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.

Search/NCT05898620
NCT05898620Phase 3ActiveOn Track

A Baseline-Controlled, Open-Label, Multicenter, Single-Arm, Pivotal Study to Evaluate the Efficacy, Safety, and Tolerability of NGN-401 in Subjects With Rett Syndrome (Embolden)

Neurogene Inc.·interventional·Posted Jun 12, 2023·Updated Jun 10, 2026

In Brief

A Phase 3 clinical trial evaluating NGN-401 for Rett Syndrome. Active but no longer recruiting, targeting 33 participants across 16 sites in 3 countries.

Detailed Summary

This study will evaluate the efficacy and safety profiles of the investigational gene therapy, NGN-401, in females with typical Rett syndrome.

Study Details

Study Typeinterventional
Allocation--
Masking--
Primary Purpose--
ConditionsRett Syndrome
CountriesAustralia, United Kingdom, United States
Collaborators--

Timeline

Phase 3Active
2024202520262027202820292030
First PostedJun 12, 2023
Enrollment StartJun 13, 2023
Primary CompletionDec 1, 2029
TodayJul 2, 2026
Enrollment to primary: 6.5 yearsPosted 3.1 years agoPrimary completion in 3.4 years

Interventions

NGN-401genetic

NGN-401 is a non-replicating, recombinant AAV9 carrying a full length human MECP2 transgene.