At a glance
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Developing an Innovative Decision Support Tool for Pediatric Neuromuscular Scoliosis- Aim 1
In Brief
A clinical study evaluating Ambiguity, Complexity, and 2 other interventions for Multiple Chronic Conditions and Children With Medical Complexity. Completed, enrolled 831 participants across 2 sites.
Detailed Summary
The goal of this clinical trial is to compare different strategies to communicate around potential risks and benefits related to treatment decision making in parents/adult caregivers of children with medical complexity. The objective of this study is to identify the most effective ways to communicate decision-related risks and benefits to improve the quality of caregiver decision making for children with medical complexity. Participants will view a video of a simulated clinic visit and related medical information and complete a survey about their experiences. Researchers will compare participant survey responses to see if decision quality changes based on the information reviewed by the participant.
Study Details
Timeline
Interventions
The intervention is a novel communication approach to communicate ambiguity related to the potential risks and benefits associated with clinical decision making for parents and caregivers of children with medical complexity.
The intervention is a novel communication approach to communicate complexity related to the potential risks and benefits associated with clinical decision making for parents and caregivers of children with medical complexity.
The intervention is a novel communication approach to normalize and explain the inherent uncertainty faced by parents of children with medical complexity during clinical decision making.
Parent and caregiver narratives about their decision making experiences for the care of their child with medical complexity.