At a glance
ClinicalIndex Comparison Record- ✓At least 18 years of age
- ✓Self-identifies as Black American and is the principal caregiver of a community-dwelling person with dementia (not in hospice)
- ✓Provides hands-on care multiple times a week
- ✓Has access to an electronic device and/or broadband internet
- ✕Unable to provide informed consent
- ✕Under 18 years of age
- ✕Cognitively impaired
- ✕Plans to relinquish caregiving or move the person with dementia to institutional setting within 6 months
Standardized by ClinicalIndex from the ClinicalTrials.gov record · verify against the source.
Caregiving While Black-LIVE: Empowering Black Dementia Caregivers to Navigate Care
In Brief
A clinical study evaluating Caregiving While Black-LIVE for Dementia. Completed, enrolled 40 participants across 1 site.
Detailed Summary
This study will test the psychoeducation course, Caregiving while Black - Learning In Vital Engagement (LIVE), among Black caregivers providing care to persons with dementia. This course aims to enhance Black caregivers' capacity to cope effectively with their caregiving role of navigating care and the world of healthcare in ways that take into consideration the social and cultural context of their unique life experiences.
Study Details
Timeline
Interventions
Caregiving while Black-LIVE is a psychoeducation program that aims to intensify the development of caregiver mastery by integrating the online learning assets of the fully asynchronous Caregiving while Black program with synchronous, group-based opportunities for interactivity and active learning. The Caregiving while Black course includes topics of navigating the healthcare system, managing home life, and caregiver self-care. Once enrolled in the course, participants will be provided instructions for accessing the weekly sessions and course online, and supplemental course materials will be mailed to them. The Canvas platform enables the research team to monitor each individual's movement in the cohort through the asynchronous part of the course. Nudges and reminders to view these materials are sent twice a week via text or email with participant's consent. Synchronous sessions are conducted on a videoconferencing platform.