At a glance
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Assessing the Impact of Internet-Guided Pilates Training on People With Hypermobility
In Brief
A clinical study evaluating Online Pilates exercise for Hypermobile Ehlers-Danlos Syndrome and Hypermobile Spectrum Disorder. Completed, enrolled 440 participants across 1 site.
Signals
Detailed Summary
People with hypermobile Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorder (hEDS/HSD) often have pain, coordination problems, and low tolerance to activity and exercise. There is a publicly available on-line, independent Pilates program designed specifically for this population. This research project proposes to measure pain, function, and common symptoms in individuals before and after 8 weeks of using this on-line Pilates module, and will follow up 6 months later, and compare to an 8-week wait-list control group.
Study Details
Timeline
Arms & Interventions
Pilates exercise, Trying to do 25 min of Pilates 3x/week for 8 wks
Waiting 8 weeks without starting Pilates
Interventions
Participants will be asked to do their Pilates practice while watching the videos (not from memory) to ensure that they are performing techniques optimally. Each module lasts 25 minutes, but includes some resting activities so modules are not vigorous or fatiguing for most people. Nonetheless, subjects will be instructed to omit activities that they feel they cannot do safely. Participants can pause a session to add more rest breaks, if needed, or stop and complete a session later. Participants will attempt to do 3 Pilates modules per week, for a total of 75-90 minutes/week (depending on the exact length of the modules they do).